On November 1, 2013, the PRP Alliance website was launched and the PRP Survival Guide appeared as a section with basic information.
On May 20, 2015, the PRP Survival Guide was re-introduced as a standalone website to make information about PRP more accessible to patients and caregivers.
Today the PRP Survival Guide begins a major transition has over 600 web pages
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PRP Survival Guide
Same content, but back where it started!
What is the Plan?
The PRP Survival Guide has three sections: Basics, Treatment and Daily Life. The content of each section will not change. We are simply moving the content of thhe PRP Survival Guide website into the PRP Alliance website,
The content will remain the same.
We still begin with the basics. Whether you are a newly diagnosed patient, “seasoned traveler” or supportive caregiver (spouse, partner, parent, member of the family or friend), the “basic questions” are at the core of understanding pityriasis rubra pilaris. A good place to start.
From the patient perspective there are three observations to be made about treating pityriasis rubra pilaris.
- Each PRP journey is unique and predictably unpredictable.
- You are not alone. There is a global PRP community of kindred spirits.
- What works for one doesn’t work for all.
There are daily challenges to body, mind, and spirit encountered by all PRP patients. Nearly 100 topics range from ALCOHOL to WORKPLACE reflect the collective insights and observations of the PRP global community.
