From the Editor
The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we are best positioned to harvest that knowledge.
What complications had the most profound impact during your version of PRP?
Bill M (Plano, TX)
My “active” journey with PRP lasted 20 months (August 2012 to April 2014). I was retired at the time of onset and covered under my wife’s health insurance policy. UnitedHealthcare’s copays for acitretin, triamcinolone, Clobetasol® and Desonide® were reasonable. I am the first to admit that my situation was a “best case scenario” for such a mean-spirited skin disorder.
I simply don’t know what I would have done without insurance. How can a PRP patient treatment plan include biologicals? Without affordable copays, the drugs I needed would have been unaffordable.
