Tales from the Open Road The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we can harvest that knowledge. Tell us your story. Share what you have learned as a patient diagnosed with […]
PRP Journeys — The Road Less Traveled Read More »
From the Editor… When it comes to managing expectations, a newly diagnosed PRP patient will eventually realize that the flaking skin cascading daily from their body will fall victim to gravity. While hardwood floors are relatively easy to clean, the carpeted areas of a PRP domicile are more of a challenge. Over the years I have heard tales
What’s the best vacuum cleaner Read More »
Issues related to pets and animals This issue of PRP, pets and animals was recently discussed in the Land of Chat (PRP Facebook Support Group). An effort will be made during PRP Awareness Month (November 1-30, 2020) to harvest the observations of the PRP global community. Tierney R (Virginia Beach, Virginia) created a poll on
Nose and nasal-related issues Here’s what we already know. A runny nose is a common occurrence among PRP patients. A runny nose is yet another indignity thrust upon us as we journey forward. According to the Mayo Clinic, a runny nose is excess nasal drainage. It may be a thin clear fluid, thick mucus, or something in
NOSE & NASAL ISSUES Read More »
PRP and Work-Related Issues While I faced the typical and predictable challenges to body, mind and spirit all PRP patients face, there was one major exception: the workplace. I was retired when the “Red Bastard” came knocking on my door in August 2012 Every PRP journey is unique. For many PRP patients the onset of
PRP and the Workplace Read More »
Issues related to flares The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we are best positioned to harvest that knowledge. Share what you have learned about flares and setbacks. Share articles you feel
New Topic to Develop ❏ FINANCIAL ASSISTANCE❏ COST OF HEALTHCARE From the Editor The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we are best positioned to harvest that knowledge. Share what
Financial Challenges of PRP Read More »
FROM THE EDITOR The Lion’s Share of information presented in PRP 101 comes from Land of Chat posts and comments. The purpose of “In the Queue” is to provide a staging area for the collection and processing of PRP patient and caregiver sights and observations. The post(s) listed below are “In the Queue” for content development
Ear & Impaired Hearing : In the Queue Read More »
Issues related to ears and hearing The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we are best positioned to harvest that knowledge. Share what you have learned about PRP, ears and
Ears and Impaired Hearing Read More »
From the Editor One of the many frustrating aspects associated with pityriasis rubra pilaris is reflected in the following mantra: “What works for one doesn’t work for all.” Over the past few years, however, I have taken the opportunity its to amend the Treatment Mantra to reflect a more positive reality: “What works for one doesn’t work for all,but if
Topicals — What Works Read More »