PRP Survival Guide

4-Daily Life

PRP Cartoons

  Editor’s Note: I know that posting the cartoons shared by members of the PRP Global Community probably violates a copyright laws somewhere, but sometimes a good chuckle is worth getting a cease and desist order. Can’t be any worse that the phone call I received from Dr. Golden’s nurse on November 28, 2012 confirming my […]

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PRP Journeys — The Road Less Traveled

From the Editor The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we can harvest that knowledge. Tell us your story. Share what you have learned as a patient diagnosed with PRP. from onset,

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Challenges of PRP

EDITOR’S NOTE: While PRP is not life-threatening, it is absolutely life-altering. The journey from onset through redemption is not a high-speed highway with a beautiful view. To the contrary, it can be a treacherous road of pain and discomfort, a seemingly endless series of hills and mountain-like barriers with road blocks and detours to impede your

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Focus on Fingernails

From the EditorThe PRP Survival Guide is a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. We need to harvest that knowledge for those in need of enlightenment. Share what you have learned about the impact of PRP on hands,

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PRP Community Database Update Grant

by Bill McCue, Founder & President, PRP Alliance, Inc. A little bit of history… When I was diagnosed with adult onset PRP on November 28, 2012, I immediately joined the  PRPSupport Group and subscribed to their email-based forum. As a newcomer to that group, I was frustrated by the lack of response to the questions I posted.

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The Right to Say “NO”

. Editor’s Note: Regardless of the worthiness of any cause, you have a right say “No”.It’s very easy to say “No” when a stranger knocks on your door. Whatever they’re selling, we’re not buying. Let’s face it — we’re all getting pretty darn good at saying “No”. In fact, for most of us, “No” has become

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