FROM THE EDITOR
The Lion’s Share of information presented in PRP 101 comes from Land of Chat posts and comments. The purpose of “In the Queue” is to provide a staging area for the collection and processing of PRP patient and caregiver sights and observations. The post(s) listed below are “In the Queue” for content development under the category of PRP & KIDS.
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(1) PRP & KIDS
Ranae G — Brandon, Mississippi; March 19, 2019 (31 comments)
“Anyone have a toddler or child with PRP?
(2) PRP & KIDS
Stephanie D — Colorado; February 27, 2019 (24 comments)
“Hmm, so this rash has spread rapidly over my 18 month old. Just curious, are we in the worst of it? Does it get worse before it gets better? I really want to try not to give him oral meds, but the topical creams and vaseline, ointments, lotions, etc don’t seem to be helping at all right now! Its like the prescription topical creams work for a week or so and I think he will get better, then we take 2 steps backward. There is very little area on his body without a rash. Or should we just try oral meds? I’m just nervous to do oral meds. Has anyone’s kids had major side effects from them?”
Ranae G — Brandon, Mississippi; March 25, 2019 (40 comments)
Looking for advice! We are waiting to see a pediatric dermatologist on April 30. My Emma was just diagnosed with PRP. The worst places are her hands/feet. Usually doesn’t bother her much, just looks painful. (X3 months). Yesterday they have started cracking? Maybe. And she’s complaining of them hurting. Any advice on what would help best with her discomfort/cracking of her hands? We are currently applying steroids AM & PM.”
(4) PRP & KIDS
Samantass S — Lithuania; March 10, 2019 (39 comments)
“Our girl was biopsied and got confirmation that we have prp. “
(6) PRP & KIDS
(7) PRP & KIDS
Kerstin F — Frankfurt, Germany; November 3. 2018 (66 comments)
“This is my 2.5 year old son Louis. The first pictures are from August 2018 with MTX. The second from October 2018 after discontinuing the medication. We decided to take a living without medication and change the diet and switch to homeopathy. As you can see with success! between the pictures are 2 months and my son is finally happier and has no more pain.”
(8) PRP & KIDS
(9) PRP & KIDS
Love R — Austin, Texas; February 22, 2019 (28 comments)
“My baby will be turning 3 in May, she started with a small rash around her eyes and mouth In november after having a virus. We had a skin biopsy done after 3 hospital visits , her rash has now spread. Doctor has gave us some Tazorac to mix with aquaphor but her skin has begun to thin out. Next visit we will be talking about oral medication. He mentioned a medication that interferes with bone growth, I was wondering if any other parent has any medication that has worked on their children or any negative side effects. It’s hard to find any information on this skin disease when it comes to small children.”
(10) PRP & KIDS
Stephanie D — Colorado; February 20, 2019 (85 comments)
“Hi All, my son was diagnosed with PRP less than a month ago. He just turned 18 months old. His rash started around January 3rd on his face and forehead, then a couple days later the palms of his hands and sole of his feet became bright red, hot, and painful. They started peeling a few days later.” Follow link to full post.
(11) PRP & KIDS
Ginny M — Lexington, SC; February 16, 2019 (16 comments)
“New people! The photos are of my , now 14 year old sons, they presented with prp by age 4 weeks. We went through just about every treatment until we found Stelara helped the most. Please keep faith and hope.”