PRP 101: DAILY LIFE

This section of PRP 101 focuses on the daily challenges of body, mind, and spirit encountered by PRP patients and their caregivers. The topics range from ALCOHOL to WORKPLACE.

Every PRP journey is unique. The phrase, “my version of PRP”, helps underscore the fact that “What works for one does not work for all.”

Forewarned is forearmed. Here are topics that PRP patients and caregivers want to ponder.

And remember…


ACUTE PHASE


ALCOHOL


AQUAPHOR (Free Product Program)


BATHING & SHOWERING


CAREGIVERS /  CARERS


CHALLENGES OF PRP


CHILDREN WITH PRP

❏   AN OPEN LETTER FROM A PRP MUM

❏   PRP PARENTING INDEX

❏   PRP PARENTS & KIDS SUPPORT GROUP

❏   SCHOOL

❏   STIGMATIZATION

❏   LAND OF CHAT FEEDBACK

❏   PRP & KIDS: IN THE QUEUE


CLOTHING


COMMUNICATING WITH FAMILY & FRIENDS

❏   HOW TO PRONOUNCE PRP


COPING STRATEGIES

❏ HUMOUR & POETRY

❏  ART

❏ INSPIRATIONS


COVERAGE (RULE OF NINES)

❏ COVERAGE: IN THE QUEUE

DIET and NUTRITION


DISABILITY

AMERICANS WITH DISABILITIES ACT (ADA)

❏   PATIENT ADVOCATE FOUNDATION

❏  MEMORANDUM SUPPORTING IAN LITTLEJOHN (PDF)

❏ APPLYING FOR DISABILITY: IN THE QUEUE


DRY SKIN (SEE MOISTURIZING)


EARS & IMPAIRED HEARINGS

❏ EARS & IMPAIRED HEARING: IN THE QUEUE


ENERGY & FATIGUE


EXERCISE AND PHYSICAL ACTIVITY


EYES AND IMPAIRED VISION


FEET 

  FEET AND MOBILITY

  FOOTWEAR

  SKIN REMOVAL STRATEGIES

  HANDICAP PARKING

  PHOTO GALLERY OF FEET

❏   FEET: IN THE QUEUE


FINDING A PRP-SAVVY DERMATOLOGIST

❏ CENTERS OF EXCELLENCE

❏  U.S. DERMATOLOGY DEPARTMENTS, OUT REACH PROGRAM

❏ U.S. DERMATOLOGY DEPARTMENTS (PDF)


 FISCAL CHALLENGES OF PRP

 FINANCIAL ASSISTANCE

 COST OF HEALTHCARE


FLARES


GLOSSARY


HAIR: IN THE QUEUE


HANDS

 DEXTERITY

 GLOVES — INDEX

NITRILE GLOVES

VITRILE GLOVES

FINGERNAILS

FINGERNAIL CARE

 FINGERNAILS: IN THE QUEUE


HEALING MILESTONES


HOPE


HOUSEKEEPING


HUMIDIFIERS


INFECTIONS (flu, colds, etc)


ITCH and  ITCH RELIEF

  ITCH FEEDBACK


JOINT PAIN


LAUNDRY

❏  LAUNDRY CHALLENGES: IN THE QUEUE


LEGS AND MOBILITY

 IMPACT OF IMPAIRED MOBILITY


LIP CARE


LYMPH NODES, GLANDS AND BUMPS


MAKEUP


MANAGING EXPECTATIONS


MARIJUANA


MEET & GREETS


MENTAL WELLNESS — SEE PRP AWARENESS MONTH


MOISTURIZERIZING 

❏   AQUAPHOR (free product Program)

❏   TOPICALS: IN THE QUEUE


NUTRITION and  SUPPLEMENTS

❏  USING DIETARY SUPPLEMENTS WISELY

❏  HOW TO BECOME A NUTRITIONIST


NOSE, RUNNY 

 ABSENCE OF MUCOUS


NEW PATIENT/MEMBER ORIENTATION


PAIN and PAIN MANAGEMENT

PAIN & PAIN RELIEF: IN THE QUEUE


PETS and ANIMALS


PREGNANCY


RELAPSES and SETBACKS 

❏ COMPLICATIONS —COMMORBIDITIES

❏ SETBACKS — FLARES


RUDE PEOPLE, HOW TO DEAL WITH


SCALP

❏ SCALP: IN THE QUEUE


SELF-ADVOCACY


SHEDDING, FLAKING and PEELING


SLEEP and SLEEP DEPRIVATION


STIGMATIZATION


STRESS and TRIGGERS

❏ STRESS (PSORIASIS PERSPECTIVE)

❏ STRESS — A PATIENT PERSPECTIVE


SUN and ULTRAVIOLET LIGHT


SWEATING and THERMOREGULATION


SWIMMING


SWOLLEN FEET and LEGS


TALES OF THE ROAD


TATTOOING and BODY ART


THERMOREGULATION and SWEATING

SWEATING: IN THE QUEUE

 THERMOREGULATION: IN THE QUEUE


TRAVEL and VACATIONS

 TRAVEL & STARES: IN THE QUEUE


TRIGGERS and STRESS


VACUUM CLEANERS

 VACUUM CLEANERS: IN THE QUEUE

❏  PRP 2020 Industrial Strength Vacuum Cleaner (spoof)


WEIGHT

 WEIGHT LOSS: IN THE QUEUE


WORK-RELATED INDEX

❏   WORKPLACE STORIES — TO WORK OR NOT TO WORK

 PRP, ADA AND THE WORKPLACE 

 
  

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