Glossary List — Under Development

The following list of terms is under consideration for inclusion in the PRP Glossary. The definitions will be short. See examples below. If you would like to ADD a term, please email editor@prpSurvivalGuide.org.

ACQUIRED VERSUS INHERITED

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ACUTE STAGE

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AGE AT ONSET

ALLERGIC REACTION

ANECDOTAL RESEARCH

ATOPIC DERMATITIS

BIOLOGICALS

BIOPSY

CARD 14

CAREGIVER, CARER

CAUSES

MORE

CRACKS (fissures)

CREAM VERSUS OINTMENT

Prior to my “official” PRP diagnosis I was prescribed triamcinolone ointment for seborrheic dermatitis. I was miserable. The “slimy feel” continued for two months. My dermatologist prescribed triamcinolone ointment. When I asked if there was a “cream version” , I was told that the ointment was more effective. “How more effective, I asked. It was then I made a calculation: ointment = feels yuk-kee and cream = feels yummy. The decision to “go cream” had an immediate and profound effect on my mental wellness. I slathered with triamcinolone cream for over six months. It was a good decision.

CREATE A TEST  — WHO’S WHO IN PRP (1828-1889)

CUTANEOUS T-CELL LYMPHOMA

DECISION-MAKING, THE PROCESS OF

DELETE BUTTON

Only members of thePRP Facebook Support Group appreciate the value and utility of the delete button with which Tierney Ratti (Virginia Beach, VA) dispatches charlatans, the nefarious sellers of Ban-Ray sunglasses, and a few masquerading as us. The PRP Facebook Support Group is a Closed Group with three administrators watching for interlopers.

DEMOGRAPHICS OF PRP

DEPRESSION

DERMATOLOGIST

DERMATOPATHOLOGIST

DEXTERITY, IMPAIRED, HANDS & FINGERS


DIAGNOSIS

When a dermatologist examines a patient who will eventually be diagnosed with PRP, they may see signs and symptoms that suggest a more common skin disorder.  MORE


DIAGNOSIS, DIFFERENTIAL

When that dermatologist combines medical training, clinical observations and biopsies and makes a diagnosis of psoriasis or atopic dermatitis, it is called a differential diagnosis — not a mistake. A differential diagnosis is how the medical community defines a diagnosis other than the one that is finally established. MORE


DiAGNOSIS, PRESENTATION

DIAGNOSIS, OFFICIAL

DISABILITY

DRYNESS / FLAKING

DURATION

EAR STUFF

EARS, IMPAIRED HEARING

EBB AND FLOW

ECTROPION

EFFICACY

EMOLLIENTS

EQUAL OPPORTUNITY

ERYTHRODERMA)

EXPECTATIONS, MANAGING

EYES, IMPAIRED VISION

FATIGUE

FDA

FEET & LEGS, IMPAIRED MOBILITY

FLARES

FULL BLOOM (WHEN RASH BECOMES WIDESPREAD

FUNGAL INFECTION

GARD

GENDER

GRAND ROUNDS

HAIR

HEALING MILESTONES

HEARING, IMPAIRED, EARS

HEAT INTOLERANCE

HOWLING AT THE MOON

(also: BARKING AT THE MOON). Unlike venting, howling and barking do not require any response from passersby. It is the mere act of howling/barking that brings immediate and long-lasting relief and satisfaction. It is important, however, that howlers and barkers explain why they are howling or barking. Some believe that the energized storytelling associated with howling and barking is, in itself, therapeutic.

HYPERPIGMENTATION, IRREGULAR

IMPAIRED DEXTERITY, HANDS

IMPAIRED HEARING, EARS

IMPAIRED MOBILITY, FEET

IMPAIRED VISION, EYES

INHERITED VERSUS ACQUIRED

INTERVENTION

ISLANDS OF SPARING, SKIP AREAS

ITCH

JARGON, PRP COMMUNITY

LAND OF CHAT

LAND OF HOPE

LAND OF RED & SHED

LUPUS

MANAGEMENT STAGE

MOBILITY, IMPAIRED

MOBILITY, IMPAIRED

MOUTH

MUCOUS MEMBRANES

MULTIMODAL APPROACH

NAILS

NAILS, GNARLY GNAILS

NAILS, HOUDINI NAILS

NORD

ONSET, FIRST SIGHTING OF PRP

The 2014 PRP Worldwide Census identified onset symptoms reported by 477 PRP patients. The range of symptoms — and where they appear — underscores how each case of PRP is as unique as a snowflake. Words used by PRP patients to describe the onset symptoms vary: rash (201), spot (97) or blemish (19). Other terms included itchy (70) or  patches, shedding, dandruff, bumps, sunburn and peeling (57). Words used by PRP patients to describe the location of symptoms included: Head (168) which includes: scalp, face, forehead, head, eyes, ears and nose, Upper torso (86) which includes chest, back (36), shoulder and torso, Upper extremities (66): hands, arms and fingers, and  Lower extremities (38): feet and legs. MORE

ONSET, AGE, DATE

ONSET, PRE-

PALMOPLANTAR KERATODERMA

PALMS AND SOLES

PAPULE

PITYRIASIS ROSEA

PITYRIASIS RUBRA PILARIS, DEFINITION

PLAQUES

PREDNISONE

An interim treatment that often precedes a proper diagnosis of pityriasis rubra pilaris. A patient, mistakenly thought to have seborrheic dermatitis, was prescribed ever-increasing dosages of prednisone over a two month period. On the second evening, the 60mg summoned a 20-foot rubber duck. Fortunately, the vaunted ceiling of the bedroom accommodated both the duck and a school of colorful tropical fish. While arriving paramedics were unable to confirm the duck, they did admit that no EMT on the scene had recently taken prednisone.

PREVALENCE

PROGNOSIS

PROGRESSION

PRP PARADOX

PRP PARADOX

PSORIASIS

QUALITY OF LIFE

QUESTION, THE

What is the question that every PRP patient and/or caregiver should ask their dermatologist AND when should they ask it?

RACE

RECOVERY

REFERRALS

RELAPSE

REMISSION

REOCURRENCE

RESEARCH, PRP

RETINOIDS
IMMUNOSUPPRESSANTS

SECURITY

SIGNS

SKIN

SKIP AREAS, ISLANDS OF SPARING

SLATHER

SLEEP

STRESS

SUMMARY (NAME THAT TUNE)

SWEAT

SYMPTOMS

SYNONYM, PRP

More

THERAPIES, Alternative Medicines

THERAPIES, LET IT RUN ITS COURSE

THERAPIES, NO MEDS

THERAPIES, OTHER

THERAPIES, STANDARD

THERAPIES, SYSTEMIC

THERAPIES, TIME & HOPE

THERAPIES, TOPITCAL

THERAPIES, Traditional Chinese Medicine

THERAPY VS TREATMENT

THERAPY, OBJECTIVES OF

TRIGGERS

TYPES (6)

VACUUM CLEANING, CRITICAL ROLE PLAYED BY

VENTING — A spontaneous effort by a PRP patient or caregiver in pain, whether that pain is physical or mental, real or imagined The objective is to elicit an immediate empathetic response from any passerby in the Land of Chat. Venting is an important part of the healing process not to be shared with passersby at Walmart or Target.