PRP: Autoinflamatory or autoimmune INDEX

What GARD has to say about Autoinflammatory Diseases

The Genetic and Rare Diseases Information Center once again provides patient-friendly information. Their “coverage” of autoinflammatory Diseases meets that standard. The following information is dated January 2017. If you REALLY want to know about autoinflammatory diseases, this is worth a cup of coffee and some “Quiet Time”. READ MORE

Autoinflammatory versus Autoimmune

Autoinflammatory vs. Autoimmune: What is the Difference? March 24, 2014. Jennifer Tousseau author, Karen Durrant RN editor. Researchers are learning that conditions once thought to be autoimmune are now being considered autoinflammatory.  LINK TO ARTICLE:

Autoinflammatory Alliance

The Autoinflammatory Alliance is a 501 (c)(3) non-profit public charity dedicated to promoting awareness, proper diagnosis and treatment, and improved care for people with autoinflammatory diseases. The PRP Survival Guide has signed up for the Autoinflammatory Alliance newsletter. Read more about this “Alliance” at: http://saidsupport.org/the-autoinflammatory-alliance/our-history/

Obstacles to a timely diagnosis of PRP

Is the consideration of PRP as an autoimmune diseases  an obstacle or distraction to the timely diagnosis of pityriasis rubra pilaris? READ MORE

AARDA does not considers PRP an autoimmune disease

From the Editor…
If pityriasis rubra pilaris is, in fact, an autoimmune disease, then supporting the American Autoimmune Related Diseases Association would seem like an appropriate path forward. It was on this basis that I approached the AARDA in 2015 intent upon having the PRP Alliance join.  It became clear, however, that it was the view of ARRDA that PRP was NOT an autoimmune disease. It should be noted that the National Psoriasis Foundation agrees. READ MORE

 

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