mouth and lip care

From the Editor
The PRP Survival Guide is a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. We need to harvest that knowledge for those in need of enlightenment. The image of a desert seemed appropriate for an ongoing discussion of DRY mouth and DRY lips.

Dry mouth (awaiting PRP feedback)

Lip care

Share what you have learned about PRP as a patient or caregiver. Share what you have been told by your dermatologist? Share articles  you feel might be worth reading or websites worth visiting. Please use “Leave a Reply” at the bottom of this webpage to answer the following question:

How has PRP changed the way you bathe or shower?

INDEX — mouth and lip care

2 Replies to “mouth and lip care”

  1. Dry Mouth:

    I don’t know if it’s the PRP or the medications, but I definitely have dry mouth along with the dry skin, dry hair and dry eyes.

    My dentist says if you have dry mouth, you need to brush very gently since it makes the gums fragile, and skin can slough off.

    He also recommended screening for Sjogren’s syndrome, another autoimmune disease (I had been tested and was negative). Since many autoimmune diseases can appear together, here are the symptoms for that:

    Sjögren’s syndrome symptoms include:

    ✽ multiple sites of joint and muscle pain
    ✽ prolonged dry skin
    ✽ skin rashes on the extremities
    ✽ chronic dry cough
    ✽ vaginal dryness
    ✽ numbness or tingling in the extremities
    ✽ prolonged fatigue that interferes with daily life.

    FOR MORE INFORMATION GO TO: https://medlineplus.gov/sjogrenssyndrome.html

  2. Gum care:
    My dentist recommended a Waterpik® since I am unable to properly floss with the state of my hands and fingertips, and the ever-present nitrile gloves.

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