INDEX Researching PRP

From the Editor
The PRP Survival Guide is a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. We need to harvest that knowledge for those in need of enlightenment.

Share what you have learned about PRP as a patient or caregiver. Share what you have been told by your dermatologist? Share articles  you feel might be worth reading or websites worth visiting. Please use “Leave a Reply” at the bottom of this webpage to answer the following question:

What do you want to know about PRP Research?

INDEX Researching PRP

One Reply to “INDEX Researching PRP”

  1. As of May 1, 2017, PRP research at Thomas Jefferson University is the only game in town.

    In the waning hours of PRP Awareness Month 2016, the international PRP community received GREAT news. In accordance with federal regulations, ongoing PRP research has been approved and signed-off by the Institutional Review Board (IRB) at Thomas Jefferson University.

    Dr. Jouni Uitto, Professor and Chair, Department of Dermatology and Cutaneous Biology at Sidney Kimmel Medical College at Thomas Jefferson University has invited PRP patients to participate in ongoing PRP research. Invitees can be …

    ✽ Active or in remission
    ✽ Adult or juvenile
    ✽ Young or old
    ✽ Northern or Southern Hemispheres — truly global

    This PRP research will consist of two distinct efforts:

    (1) Genetic analysis to identify genes and pathways involved in the onset of PRP, and

    (2) Clinical data analysis to improve the diagnosis and management of PRP.

    While Dr. Uitto and his researchers would prefer participation in both efforts (1 and 2), qualified invitees may enroll in either.

    To access and review the “official” PRP Patient Study Packet GO TO: http://prpsurvivalguide.org/wp-content/uploads/2017/05/Patient-Study-Packet-11.7.16-10.5.17.pdf

    If you have questions about TJU and PRP research, we’ll help you find the answers. Over 100 patients diagnosed with PRP are already participating in TJU’s ongoing PRP research).

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