INDEX medical marijuana

From the Editor
The PRP Survival Guide is a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. We need to harvest that knowledge for those in need of enlightenment.

Share what you have learned about PRP as a patient or caregiver. Share what you have been told by your dermatologist? Share articles  you feel might be worth reading or websites worth visiting. Please use “Leave a Reply” at the bottom of this webpage to answer the following question:

Have you found the use of medical marijuana beneficial?

INDEX medical marijuana

5 Replies to “INDEX medical marijuana”

  1. The following post and comments about MEDICAL MARIJUANA a began on May 19, 2016.

    The unedited version of the conversation between members of PRP Facebook Support Group is available at:

    ‎https://www.facebook.com/groups/15865278115/permalink/10155233151953116/?match=bWFyaWp1YW5h

    Diane P — Sugar Land, TX
    Anybody with PRP in a state where marijuana is legal? Ever used cannabis cream??? Looking for a miracle cure. We were ready to hop in the car and head to a legal state!

    Tasha G — Corvallis, OR
    Yes, I tried it for several weeks on my face and did not notice any difference. It didn’t help with itch or redness. I gave it an honest chance to work miracles and even took CBD orally for anti- inflammatory effects. However, I saw no results.

    Correen P — Toronto, Ontario, Canada
    Yes and yes and yes

    Emmy B — Heerhugowaard, Netherlands
    Yes and yes. I still use the oil . 2 theespoons a day, oral

    Deidre H — Houlma, LA
    Not legal here but always a way to get it! Lol! Now I did buy a vape pen and CBD oil and smoke it. It helps me with pain during the day and helps me sleep at night.

    Misti B — Vacaville, CA
    I have good results with CBD products for inflammation…doesn’t cure anything, but seems to lessen severity. I’ve heard, but don’t know if it’s true, that CBD supplements are available in states where other cannabis products aren’t legal.

    Deidre H
    That’s correct.

    Kendra H — Stockton, CA
    Cbd chews for relatively pain and itch free sleep. Topicals mostly for alleviation of joint pain.

    Rebecca L — Las Vegas, NV
    My husband used and had good results. High CBD not THC.

    African Black Soap

    Diane P
    How about African black soap??? Anyone using it?

    Kendra H
    I love those products!! Safe and gentle for PRP skin. And the shampoo and conditioner really helped my scalp/hair. Still using them. My skin said “please”

    Diane P
    I just ordered some soap. Will try the shampoo and conditioner also! Thanks!

  2. The following post and comments about MEDICAL MARIJUANA a began on January 10, 2015.

    The unedited version of the conversation between members of PRP Facebook Support Group is available at:

    https://www.facebook.com/groups/15865278115/permalink/10153774196993116/?match=bWFyaWp1YW5h

    Rita M — Oceano, CA
    How do you feel about out medical marijuana? Cannabis oil?

    Meagan W — San Luis Obispo, CA
    Hi Rita! do u live in oceano ca? Wondering cuz I live in San Luis Obispo. Medical marijuana had helped me with prp more then and other meds. Have not yet tried the oil but I’m interested

    Rita M
    I happy right now. I was thinking only person with PRP on central coast! My daughter is doing research about the medical marijuana and oils for me. What strain are you using?

    Meagan W
    You are not alone. There is another PRP patient in San Luis Obispo.Eric S. If you would ever like to meet up and chat I would love to meet another fellow prper 🙂 I don’t always get the same strain….right now I have peak 19 which I like.

    Tierney R — Virginia Beach, VA
    It should be legal in all the states.

    Margie D — Brisbane, Queensland, Australia
    It should be legal everywhere in the world, but it’s not.

    John J
    Just a matter of time it will be legal

  3. The following post and comments about medical marijuana began on December 4, 2015.

    The unedited version of the conversation between members of PRP Facebook Support Group is available at:

    https://www.facebook.com/groups/15865278115/permalink/10153693997143116/?match=bWFyaWp1YW5h

    ‎Tierney R — Virginia Beach, CA
    We have a few members who report an easing of symptoms of PRP through using marijuana. This is a touchy subject due to the legality of the drug. We would like to hear your story if you use it. You may private message me or email me at tratti@cox.net. This could be a subject matter for the Survival Guide. If TOTAL anonymity is required, your comments would NOT even include your de-identified name. Mine is Tierney R.
    No automatic alt text available.

    Meagan W — San Luis Obispo, CA
    I have found marijuana to be helpful with prp symptoms. Helps with itching, sleep, mood and allows me to relax during stressful times. Got sick of side effects from meds and constantly taking pills and applying creams. Been happier and even more sucessful with natural remedies. Interested in applying it topically and may start this month.

    Deborah B — Kannapolis, NC
    I would like to try it.

    Linda B — Oswestry, Shropshire, England, UK
    Me too Deborah B!

    Sam R — Cairns, Queensland, Austrailia
    Yep, made it less flary

    Rebecca L — Las Vegas, NV
    Check out: http://www.docgreens.org/

    Bill M — Plano, TX
    Great map and a so-so story about medical marijuana from the National Psoriasis Foundation. The article states that the Medical Marijuana Program Board of Physicians in Connecticut has recommended severe psoriasis and psoriatic arthritis be added to the list of ailments eligible for medical marijuana.”

    “While several states allow the use of medical marijuana for chronic pain, none specifically indicate psoriasis and psoriatic arthritis as conditions eligible for medical marijuana use right now. In New Mexico, medical marijuana is approved for inflammatory autoimmune diseases, a definition that would include psoriasis and PsA, and the definition of pain in California is broad enough to include psoriatic disease as well.”

    “But in 10 states with medical marijuana, psoriasis and psoriatic arthritis are not approved conditions. In most other states, ‘pain’ is approved for medical marijuana use, but ‘pain’ is not defined, leaving much to interpretation.”

    The article has a great map (06/2015) that PRP patients in the U.S. may find of interest. LINK: https://www.psoriasis.org/…/medical-marijuana-could-it…

  4. The following post and comments about medical marijuana began on September 5, 2015.

    The unedited version of the conversation between members of PRP Facebook Support Group is available at: https://www.facebook.com/groups/15865278115/permalink/10153527072478116/?match=bWFyaWp1YW5h

    ‎Sam R — Cairns, Queensland, Australia
    Marijuana and PRP. Guys I saw a study on psoriasis and marijuana. Don’t get me wrong here, i am not a pot smoker. After reading the study I said bugger it I’m going to try this. Smoking test: no result, got stoned and that wasn’t fun for me, I love being clear of mind. Eating and tea drinking test as per the study good results: actually brilliant, my flare up seems to be subsiding, I’m having days where my face looks like its going to clear up. The cabbanoids need to be ingested. No it doesnt get you stoned at all, but it does relax you physically, no mental effect. Guys this is definately related to the nerves, during this outbreak all the red spots appeared symetrically, so one red spot on the right chest chest and left chest, same place, one red sport on the right thigh and left thigh, same place, on the left hamstring next and right hamstring, same place etc etc, it is clearly nerve related. Actually before I got PRP the first time I had shingles about a year before that, whereas medical marijuana works to pacify the nervous system and for me at least is working. My PRP is still progressing, new red spots appearing here and there, some red spots joining together on the face, BUT I have to say its less agressive and the progression has slowed right down. Today my face looks three times better than two weeks ago.

    Sam R
    http://www.ncbi.nlm.nih.gov/pubmed/17157480
    Cannabinoids inhibit human keratinocyte proliferation through a non-CB1/CB2…
    NCBI.NLM.NIH.GOV

    Holly D — Eureka, CA
    I didn’t read the link yet, but I’m wondering if it needs to be THC that’s ingested, or if the CBD’s are what’s at play here. If it’s the CBD, that’s a whole different substance and can be taken separate from THC. When one takes only CBD oils, they get…See More

    Meagan W — San Luis Obispo, CA
    Thanks for sharing. Ive read a few studies that suggest there are some benefits of using marijuana for psoriasis. I think I’ve shared in the past that I smoke and it definitely helps with my nerves, the pain and itching. Have not applied topically or consumed it in many years but may give it a try 🙂

    Sean L — The Woodlands, TX
    Sam Robinson you say to eat it. Are you referring to a pill or actually eat the weed? Any time I have eaten it I have gotten stoned.

    Holly D
    That’s why I’m wondering if he’s talking about CBD oils. You can get those in a tincture, and it won’t get you high. I live in the middle of cannabis central and know people that make edibles and other lab tested products for the medical dispensaries in the area, so I’m pretty familiar with the subject if I can help with questions…

    Geoff P — Glen Iris, Australia (Melbourne)
    Looks like another chapter for Bill McCue’s book on PRP. Uncertain whether the pot chapter will be in the natural therapies section or the meds.

    Michael D — Houston, TX
    I believe it’s the CBDs that can help. I am going to try a high CBD strain infused into coconut oil. I’m told that the oil taken at bedtime can also help with insomnia/inflamation.

    Holly D
    May I ask your method of ingestion?

    Michael D
    It’s infused into the coconut oil, so by the teaspoon/mouth.

    Holly D
    Nice! I’m waiting on a tincture personally, but mine will have CBD and THC.

    Michael D
    I’m thinking that perhaps a tincture could be applied directly to clean skin, allowed a minute or two to absorb, then followed with a moisturizing cream.

    Sam D — Sydney, NSW Australia
    Modified cannabinoids (or is it the cannabinols?) are currently being tested in all sorts of labs for all sorts of things. I’m for it. I’ve seen the results on a TV show on SBS called Insight. They had the parents of a little girl who was having up to …See More

    Sam R
    When I say ‘eat’ I mean first I put the stuff in a hot tea, I drink two teas out of the same bud, and then I feel relaxed. No it doesnt make me high. I then chew and digest whatever is left at the bottom of the cup. The amount is worth about two good s…See More
    Like · Reply · 1 · September 6, 2015 at 4:21am

    Deborah B — Kannapolis, NC
    Just a few days ago I was wondering if medical marijuana would help because so much of it is related to my nerves I believe. I have anxiety attacks now which I have never had before and I get so overwhelmed being around a lot of stimulus that I have to go to my room. Where can I legally obtain The oils, the tinctures, the tea? Anything is worth a try!

    Bill M — Plano, TX
    If you are interested in the legalization of marijuana in the U.S. — check out http://www.governing.com/…/state-marijuana-laws-map…

    Tierney R — Virginia Beach, VA
    My experience is that during periods of intense itching and pain, I feel better after I smoke marijuana. I don’t know if the drug itself helps, or if I’m inebriated and just don’t care.

    Nicola G — Central Otago, New Zealand
    I’m with you there Tierney, bit of both I think. It calms me, calm is good 🙂

    Michael D
    I’m going to try the tea before bed tonight. I just don’t like smoking.
    Like · Reply · September 6, 2015 at 10:45am

    Bill M
    Michael D just shared this update about medical marijuana in the U.S. with me. Thanks!
    http://www.latimes.com/…/la-na-medical-pot-20141216

    Michael D
    My friend who makes the “special oil” says that boiling water will not extract the CBDs/THC, which is why (coconut) oil is used. He also said that the boiled bud can release some compounds when eaten but would take a while…so no tea for me.

    Burton U — Kenedy, TX
    Medical marijuan can help with nausea — when your sick enough you will try anything.

    Michael D
    Right Sam, the butter (fat) and heat extracted the active ingredients. Water alone won’t work.

    Holly D
    Vaporizing is also an option, if you buy a vape pen, you can either get a top made for green stuff, or medical places sell toppers filled with oils ready to go. Here’s a random local article I came across today.
    http://humboldtunderground.com/…/blazed-to-vape-or-not…/

    Lorna R — Eugene, OR
    There was something on the news tonight, regarding the safety of using E-Cig to smoke marijuana. Something about the oil and the marijuana. Since I am not interested I did not pay close attention.

    Sam R
    I dont know, all I know is that people are saying my face looks better

    Holly D
    I know the stuff available in oil form where I am from the medical places have all been lab tested for impurities and for potency, which is nice. You know what you are getting. And you can get a vaporizer that is totally different than the vape pens. An e cig is similar to a vape pen, but not the same thing.

    Lorna R
    So that is the issue. If I had known this topic was coming up, I would have paid closer attention, lol

    Kathleen T — Dunedin, FL
    We prescribed marinol, synthetic THC, to several end stage renal failure patients with intense pruritus, there’s an off label use for itching. So what you’re saying makes sense.

  5. The following post and comments began on July 30, 2014 on the subject of medical marijuana.

    The unedited version of this conversation is available at https://www.facebook.com/groups/15865278115/permalink/10152549554403116/?match=bWFyaWp1YW5h

    ‎Violet T
    I’ve heard that marijuana helps with inflammation and itch, and it will soon be legal in my state. I’ve talked to my doc about it, and he will prescribe if I want it, as soon as it is legal. Has anyone had success with marijuana? If you don’t want to post publicly, please send me a private message. I’m desperate to find relief. The itch is unbearable, and my skin has been red and sore for 20 years. I’m weary of being miserable every day. I’ll ask my doc to prescribe if I find others that it has helped.

    Marianne B — San Diego
    I’ve heard that it helps.

    Greer C — King George County, VA
    I do not have personal experience. However, I have a friend that is very dear to me that has used cannabis oil for inter cranial hypertension and migraines. So, if you don’t want to smoke it or eat it, the oil can be used.

    Violet T
    Rub the oil on the skin, or take it orally?

    Greer C
    My friend took it orally.

    Lauren O — Revere, MA
    Marijuana was the only thing that stopped the itching for my husband. He did not like the antihistimines they made him so tired. It helped him through two horrible months?

    Laurel A — Kennewick, WA
    I have several friends who use marijuana or cannabis oil for pain and for arthritis They say it helps them very much. I have considered it. Medical marijuana has been legalized in Washington state for years, and now it is legal for recreational use as well.

    Misti B — Vacaville, CA
    I have heard that they are having luck with some auto-immune diseases using CBD, which is one of the non-psychoactive (won’t get you high) components of marijuana. I just started it, and will post if I notice any big changes. I’m currently on the clearing side of a flare that started in March, so I’m a little uncertain if this would be the right time to see effects.

    Linda B — Oswestry, Shropshire, England, UK
    Medical marijuana seems to provide relief in a number of chronic conditions! If only it was available legally in the UK. As for getting high – sounds wonderful. Bring it on!

    Violet T
    Misti, I’m eager to hear how you do. I’d prefer something that didn’t make me high. I’ve never smoked or even drank alcoholic beverages, so am nervous about using it. However, I’m desperate enough to try something that sounds promising.

    Laurel A
    You can do cannibis oil, that is what my friends do.

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