INDEX legs

From the Editor
The PRP Survival Guide is a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. We need to harvest that knowledge for those in need of enlightenment.

Share what you have learned about PRP as a patient or caregiver. Share what you have been told by your dermatologist? Share articles  you feel might be worth reading or websites worth visiting. Please use “Leave a Reply” at the bottom of this webpage to answer the following question:

How has PRP affected your legs?

INDEX legs

3 Replies to “INDEX legs”

  1. Legs were a big issue for my husband, Julian. He suffered from painful swelling which, in turn, affected his mobility. He was hospitalized for three weeks. The dermatologist and nurses at the hospital helped me to learn how to deal with the swelling.

    Support sockings were the easiest way forward. These were tailor made to fit each leg. With legs raised on a firm pillow so the blood flow was sent back to the heart, it helped reduced the swelling. However, the nurses there were keen on using the old fashioned way. Creamed/greased up the leg then bandage from foot all the way up past the knee. Fairly tight but without stopping the flow more. Almost mummified! This helped not only with warmth so the cream absorded into the skin but with blood flow too.

    Many others have said laying on their backs with legs up against the wall, has helped.

  2. Tania — you reminded me about my own swollen legs when I was “active” and the need for compression socks.My socks were prescribed on my very first clinic visit in December 2012.

    My remission began in April 2014 and I still take furosemide (a diuretic) and wear those socks — especially when I travel. I spent a week in California in May (Disneyland) and the socks were essential.

  3. Julian pre PRP had DVT as he was a frequent flier due to his job, this of course worried us when his legs started to swell with the PRP. Support or compression socks are always worn when travelling or in any static situation, this of course continues post PRP. I am glad you mentioned travelling as others that may have had DVT, can see others that have suffered in the past can get through PRP.

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