The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we are best positioned to harvest that knowledge.
Share what you have learned about flares and setbacks. Share articles you feel might be worth reading or websites worth visiting. Here is the first question we ask.
How have you handled flares and setbacks?
A flare is an exacerbation of a chronic disease. Sometimes referred to as a flare-up, a flare occurs when symptoms of a disease that has been present for a time suddenly worsen. A flare is a transient worsening in severity of a disease or condition that eventually subsides or lessens. MORE
Ginny M (Lexington, SC)
[Circa. 2016] Six years without a flare! Here we go again! I had one right after my daughter was born and during Christmas.
The doctor says I picked up a bug from my kids and I am starting back on antibotics. No one but PRP folks will ever understand the level of intense pain once the burn starts. It’s like being on fire but not being able to get out of the flame. Right now I am thinking I am lucky because it’s just may face , ears and forearms. Now my entire body is feeling the burn! This is ridiculous. I am just whiney at the moment. I was born with PRP. I spent 3 months on the burn unit of the hospital in 2007. This is nothing but the burn always gets me emotional. My 3 kids have PRP too.