INDEX — feet, soles and toenails

From the Editor
The PRP Survival Guide is a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. We need to harvest that knowledge for those in need of enlightenment.

Share what you have learned about PRP as a patient or caregiver. Share what you have been told by your dermatologist? Share articles  you feel might be worth reading or websites worth visiting. Please use “Leave a Reply” at the bottom of this webpage to answer the following question:

What affect has PRP had on your feet?

INDEX — feet, soles and toenails

49 Replies to “INDEX — feet, soles and toenails”

  1. On May 6, 2017 a PRP announced a Healing Milestone to fellow members of the PRP Facebook Support Group. In so doing he describe a “common path” traveled by many. Members may access the entire post and comments at: https://www.facebook.com/groups/15865278115/permalink/10155191569008116/?match=ZmVldCxmb290

    ‎Martin W — Wolverhampton, England, UK
    Today I’ve been able to walk, by which I mean putting one foot in front of the other from heel to toe, for the first time since September last year which is over eight months in total. Well today I’ve been able to take a short walk in my local park with only minor discomfort. My feet appear to have only minimal cracking and when they do crack they are healing quickly. The thickened skin on my soles has started to reduce and I can flex my toes without them splitting at the joints too. This is a major milestone for me as I’ve been disabled and just looking out on the world for months. I can remember when I couldn’t get off the sofa and any pressure on my feet felt like I was being cut with broken glass. I’m not ashamed to say that I sat on a park bench and looked at the ducks on the pond and shed some tears of joy. I know that I’m still far from where I need to be but I’m so happy that I finally have some mobility back. Here are photos from last autumn and today to show the changes. I know I say it over again but I’m so thankful for all the support here.

    Howard H — Iowa City, IA
    What treatment did you use, if any? Or was the solution just the passage of time?

    Lorna R — Eugene, OR
    I am going to guess it is mostly the passage of time. The acute stage lasts about 7-12 months. I passed through that stage in about 7 months time.

    Steven C — Glenrothes, Scotland, UK
    The worst bit is trying to get to sleep with the pain. Then once you have had a couple of hours and your feet have started the process of healing then you swing your legs out the bed and put weight on them its like they are just tearing wide open then the nerve ends send signals to the brain that say’s what the f–k are you doing ouch

    Martin W
    My I know that feeling so well. Especially in the early days before I started bagging them at night as they would dry out in the night and crack open again as soon as you got out of bed and applied any weight.
    LikeShow more reactions · Reply · May 6 at 5:36pm
    Bill McCue
    Write a reply…

    Steven C
    I was told to wrap them in cling film but not for too long as it turned them to mush and made them worse

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