INDEX — energy and fatigue

From the Editor
The PRP Survival Guide is a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. We need to harvest that knowledge for those in need of enlightenment.

Share what you have learned about PRP as a patient or caregiver. Share what you have been told by your dermatologist? Share articles  you feel might be worth reading or websites worth visiting. Please use “Leave a Reply” at the bottom of this webpage to answer the following question:

How has PRP affected your energy?

INDEX — energy and fatigue

One Reply to “INDEX — energy and fatigue”

  1. My “get up and go, got up an went” a few months after onset (October 2012). I don’t know if it was the inflammation growing more intense with each passing day, the prednisone I should not have been prescribed for the seborrheic dermatitis I didn’t have or the acitretin I was finally prescribed once PRP was “officially” diagnosed.

    All I remember was being consumed by fatigue. It was a very lonely time — days filled with nothing. Then I made an astonishing discovery: the “on switch” on the back of my iMac. My computer was my ticket out of the despair of fatigue.

    One day in April 2013 I sat down at my computer, turned it on and logged into to the PRP Support Group archives. I began reading emails from fellow PRP patients and their caregivers.. It took several months, but I reviewed over 29,000 emails going back to November 1997. I also captured over 1,500 email addresses and snippets of information, e.g., onset date, onset age, initial symptoms, misdiagnoses, date of diagnosis, the names of the dermatologist s involved in diagnosis and/or ongoing treatment.

    My PRP-related fatigue was the reason I sought refuge in my computer. More importantly, my research turned out to be the best therapy for what would have become debilitating depression.

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