INDEX — disability

From the Editor
The PRP Survival Guide is a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. We need to harvest that knowledge for those in need of enlightenment.

Share what you have learned about PRP as a patient or caregiver. Share what you have been told by your dermatologist? Share articles  you feel might be worth reading or websites worth visiting. Please use “Leave a Reply” at the bottom of this webpage to answer the following question:

Have you needed to file for disability insurance?

INDEX — disability

2 Replies to “INDEX — disability”

  1. The PRP community really needs to get a better handle on filing a disability claim with the Social Security Administration.

    Geri B (Lakeland, Fl) recently shared the following website. Disability Evaluation Under Social Security.

    Not a bad place to start.

    What we really need are samples of applications that WORKED and appeal letters that WORKED.

  2. I feel like screaming right now. I just came back after explaining to my primary physician that my feet hurt so bad can hardly stand or walk for 10 minutes on them.

    I asked, “How am I suppose to work if I can’t do that?”

    He responds, “You can’t … well … duh….” Then he goes, “You may need disability.”

    I think, “Duh.” I told him I started a new job and don’t have any disability. I said, “WE need to talk about state disability.”

    I think the WE comment made him uneasy. He responded, “That will be hard double.” Then he changes the subject.

    When are our doctors gonna get it? I feel like I’m caught in the middle with 3 doctors (primary care, podiatrist and dermatologist) that want to help. But when you talk DISABILITY they turn an go in the other direction. They don’t get what we go through. I even though I showed him my feet, he directed me back to my dermatologist. I’m so frustrated! His answer to my problem seems to be a handicapped sticker. I hate getting a sticker, but it has be done so I can get into work.

Leave a Reply