From the Editor
The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we are best positioned to harvest that knowledge.
Share what you have learned about the ways PRP has impaired your dexterity. Share articles you feel might be worth reading or websites worth visiting. Here is the first question we ask.
How has PRP impaired your dexterity?
Bill M (Plano, TX)
I don’t remember when I actually started dropping things around the house. As my PRP progressed, however, the skin on my hands thinned, my finger nails started to disappear and my fingertips became sensitive.
Have you ever boiled cranberries to make cranberry sauce? The cranberries actually pop open and the mini-explosion leaves a scar in the shape of an “X”. For months I had 10 finger tips with what felt like 10 paper cuts.
Eventually, I bought a pair of gloves — not the nitrile gloves I wore at night, but a $10 pair of gloves from Home Depot. These weren’t the heavy work gloves used in yard projects. They were, in fact, leather and padded with Spandex stretch panels.
Today, three years after remission, my hands are back to normal (pre-onset). However, I still wear my PRP gloves.