INDEX mobility

From the Editor
The PRP Survival Guide is a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. We need to harvest that knowledge for those in need of enlightenment.

Share what you have learned about PRP as a patient or caregiver. Share what you have been told by your dermatologist? Share articles  you feel might be worth reading or websites worth visiting. Please use “Leave a Reply” at the bottom of this webpage to answer the following question:

In what ways has PRP affected your physical mobility?

INDEX mobility

One Reply to “INDEX mobility”

  1. It was bad enough to be bedridden for awhile. Then one day I ventured out of the carpeted bedroom and shuffled across dark hardwood floors leaving white flakes and dust in my wake.

    Weeks went by and I ventured out the front door and felt the cold air of winter.

    But the first time I was driven to Walmart I needed one of those scooters. It was a defining moment for me. The scooter wasn’t going to be a crutch.

    But four nearly a year I did use a handicapped sticker. It was very helpful to get close to the entrance of Walmart or any store for that matter. I kept looking at the date on the sticker and wondered if I should get it renewed in October 2013 — 14 months after onset.

    When the time came I didn’t renew the sticker. I added the retirement of my handicapped sticker as a Healing Milestone.

    My advice: If it helps, get one. When you don’t need it, get rid of it and do the Happy Dance.

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