Genetic and Rare Disease Information Center

From the editor…

The Genetic and Rare Diseases (GARD) Information Center is a program of the National Center for Advancing Translational Sciences (NCATS) and funded by two parts of the National Institutes of Health (NIH): NCATS and the National Human Genome Research Institute (NHGRI). GARD provides the public with access to current, reliable, and easy to understand information about rare or genetic diseases in English or Spanish.

Who can GARD help with information?


✽  People who have rare or genetic diseases.
✽  Parents, family members, and friends of someone with a rare or genetic disease.
✽  Doctors, nurses, genetic counselors, other health care providers, social workers, and teachers who work with people with rare or genetic diseases.
✽  Scientists who are studying rare or genetic diseases and need information for their research or for people taking part in studies.
✽  Community leaders who are helping people find resources about rare or genetic diseases.
✽  Advocacy groups who want up-to-date disease information for their websites.
✽  Members of the general public who want to learn more about a rare or genetic disease.

Where can GARD articles be found in the PRP Survival Guide?

GARD is an important resource for the PRP Survival Guide, the PRP Alliance and the worldwide PRP community.

Chapter 2 — Diagnosing PRP

✽   ICD Coding for Rare Diseases — GARD

Chapter 3 — Treating PRP

✽   How to Find a Disease Specialist — GARD

Chapter 4 — Daily Life

✽   Using Dietary Supplements Wisely — GARD

✽   Support for Patients and Families — GARD

✽   Finding Financial Aid — GARD

Chapter 6 — Research

✽   How to Get Involved in Research — GARD

✽   About Clinical Research — GARD

Genetic and Rare Disease Information Center

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