EURORDIS

07.02.01 — EURORDIS

EURORDIS

http://www.eurordis.org

EURORDIS-Rare Diseases Europe is a unique, nonprofit alliance of over 700 rare disease patient organisations from more than 60 countries that work together to improve the lives of the 30 million people living with a rare disease in Europe. By connecting patients, families and patient groups, as well as by bringing together all stakeholders and mobilizing the rare disease community, EURORDIS strengthens the patient voice and shapes research, policies and patient services. The PRP Alliance actively support the PRP Community on RareConnect, an initiative of EURORDIS.

Advocacy opportunities

❋   Support Rare Disease Day in 2018 (February 28).

❋   Join and promote participation the the PRP RareConnect Community, RareConnect is an initiative of EURORDIS.

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Use the contact form below to request information about becoming a National or Global PRP Advocate

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